Douglas Data and Digital Science for Mental Health
From Law to Practice: PIAs (EFVPs) in Research at COMTL
Wed, Oct 23
|Bowerman room
Marie-christine Boulianne & Adrian Mares
Time & Location
Oct 23, 2024, 12:00 PM – 1:00 PM EDT
Bowerman room, Dobell Pavilion, 6875 Bd LaSalle, Verdun, QC H4H 2G9, Canada
About the event
Zoom registration HERE
Talk description:
This conference will examine the implications of the new Act respecting health and social services information, also known as " Bill 5," on research activities at the CIUSSS de l'Ouest-de-l'Île-de-Montréal (COMTL). We will address the new legal framework for Privacy Impact Assessments (PIAs, known as " EFVPs " in French) in the context of research, offering a pragmatic perspective on their implementation.
We will explore the crucial role of PIAs (" EFVPs ") in obtaining authorizations to access health and social services information (HSSI) without the consent of the individuals concerned, as well as the evaluation criteria used by the competent authorities. Participants will gain a clear understanding of the new legal requirements, authorization processes, and best practices for ensuring the protection of HSSI in their research projects. The presentation will focus on practical advice and concrete strategies to effectively navigate this new regulatory landscape.
Short bio:
Marie-Christine, former coordinator of mental health research projects for the CRISP group at the Douglas Institute, is now a professional at COMTL. She specializes in the implementation of PIAs and supports research by ensuring compliance with personal data regulations, while promoting ethical practices and good data governance.
Adrian Mares is a professional at COMTL, specializing in the protection of personal information. He is involved in policy implementation, privacy impact assessments (PIAs), and privacy incident management. As a former information professional at UETMISSS, he brings a global perspective to data protection in the healthcare sector, drawing on his expertise in document and information management.